General Program Contacts, Division of Rare Diseases Research Innovation

Contact the staff listed below for more information about the NCATS Division of Rare Diseases Research Innovation.

General contact information: (301) 435-0916 or NCATS Division of Rare Diseases Research Innovation.

Stay connected with the Division of Rare Diseases Research Innovation on Facebook and Twitter.

Area of Expertise

Contact

Phone Number

Clinical Trial Readiness Grants

Program Director: Alice Chen Grady, M.D.

(301) 827-2015

Genetic and Rare Diseases (GARD) Information Center

Program Director: Eric Sid, M.D., M.H.A.

Program Administrator: Jim Dickens

(301) 827-3073

(301) 827-9507

Genetic Therapies, General 

Program Director: Philip John (P.J.) Brooks, Ph.D.

Program Administrator: Deanna Portero

(301) 443-0513

 

(301) 451-9968

GRDR GUID (Global Unique Identifier)  

Program Director: Eric Sid, M.D., M.H.A.

(301) 827-3073

NCATS Scientific Conference Grants

Program Director: Alice Chen Grady, M.D.

(301) 827-2015

NCATS Toolkit for Patient-Focused Therapy Development (Toolkit)

Program Director: Eric Sid, M.D., M.H.A.

Program Administrator: Jim Dickens

(301) 827-3073

(301) 827-9507

Non-Viral Technologies for in vivo Delivery of Genome Editors

Program Director: Philip John (P.J.) Brooks, Ph.D.

(301) 443-0513

Rare Diseases Clinical Research Network (RDCRN)

Program Director: Tiina Urv, Ph.D.

Program Administrator: Joanne Lumsden, Ph.D.

(301) 827-2746

(301) 443-3676

RDCRN Coalition of Patient Advocacy Groups (CPAG)

Program Director: Tiina Urv, Ph.D.

Program Administrator: Joanne Lumsden, Ph.D.

(301) 827-2746

(301) 443-3676

Rare Disease Day at NIH

Program Director: Alice Chen Grady, M.D.

Program Administrator: Meera Shah, M.P.H.

(301) 827-2015

(301) 827-6222

Rare Diseases Registry Program (RaDaR)

Program Director: Eric Sid, M.D., M.H.A.

Program Administrator: Jim Dickens

 

(301) 827-3073

(301) 827-9507

Somatic Cell Genome Editing Program

Program Director: Philip John (P.J.) Brooks, Ph.D.

Program Administrator: Deanna Portero

 

(301) 443-0513

 

(301) 451-9968

Trans-NIH Rare Diseases Working Group

Program Director: Tiina Urv, Ph.D.

Program Administrator: Meera Shah, M.P.H.

(301) 827-2746

(301) 827-6222

All Other Inquiries

Program Administrator: Tierra Clarke

(301) 435-0916

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