Ronald J. Bartek, M.A. (2020)

Ronald J. BartekRonald J. Bartek, M.A., is the co-founder and founding president of the Friedreich’s Ataxia Research Alliance, a nonprofit organization dedicated to educational and research efforts aimed at developing treatments and cures for Friedreich’s ataxia. He also serves on the board of directors of the National Organization for Rare Disorders and on the Data and Safety Monitoring Board of the NCATS-led Rare Diseases Clinical Research Network. Recently, Bartek served as a member of the National Advisory Neurological Disorders and Stroke Council and sat on a panel of patient advocates assembled by the director of the National Institute of Neurological Disorders and Stroke to help develop the Institute’s strategic plan and enhance two-way communication between the patient and scientific communities. His past experience includes serving as the partner and president of a business and technology development, consulting and government affairs firm (Mehl, Griffin & Bartek) and directing the American Friends of the Czech Republic. Bartek’s career also includes 20 years of federal executive branch and legislative branch service in defense, foreign policy and intelligence. Bartek graduated from the United States Military Academy at West Point and holds a master’s degree in Russian area studies from Georgetown University.