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NCATS Advisory Council

Council Subcommittee on Patient Engagement

The NCATS Advisory Council Subcommittee on Patient Engagement was established at the September 2013 Advisory Council meeting. The mission of the subcommittee was to recommend strategies to ensure that patients and their communities are actively engaged in NCATS’ translational programs. The subcommittee highlighted opportunities for systematic engagement of patients in ongoing programs and for ensuring that their collective voice is present throughout the translation spectrum — moving basic discoveries to clinical testing through uptake of effective interventions into care settings.

This currently inactive subcommittee included members who have extensive expertise advocating for patients, leading patient advocacy organizations, and working with or engaging patients in research and drug development. Their insights and perspectives were critical to establishing and implementing strategies for the engagement of patients, communities and the public across the spectrum of NCATS activities.

Subcommittee Members

Co-Chairs

Margaret A. Anderson, M.A.
Executive Director
FasterCures Center for Accelerating Medical Solutions
Washington, D.C.

Meryl Weinberg, M.A.
President
National Health Council, Inc.
Washington, D.C.

Members

Robert J. Beall, Ph.D.
President and CEO
Cystic Fibrosis Foundation
Bethesda, Maryland

Todd B. Sherer, Ph.D.
Chief Executive Officer
Michael J. Fox Foundation for Parkinson’s Research
New York, New York

Scott J. Weir, Pharm.D., Ph.D.
Director
Institute for Advancing Medical Innovation
University of Kansas Cancer Center
Kansas City, Kansas

NCATS Liaisons

Elaine Collier, M.D.
Senior Advisor to the Director
Office of the Director
National Center for Advancing Translational Sciences

Christine M. Cutillo
Special Assistant to the Director
Office of the Director
National Center for Advancing Translational Sciences

Stephen C. Groft, Pharm.D.
Senior Advisor to the Director
Office of the Director
National Center for Advancing Translational Sciences

Last updated: 08-14-2015
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