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Global Rare Diseases Patient Registry Data Repository

GRDR® in Action

The goal of the NIH/NCATS Global Rare Diseases Patient Registry Data Repository/GRDR® program is to build a Web-based resource that integrates, secures and stores de-identified patient information from many different registries for rare diseases, all in one place. Read the latest news about this program below.

August 2015

NCATS and Harvard Collaborate to Advance Global Rare Diseases Data Repository

NCATS awarded a supplemental grant to the Harvard Medical School’s Department of Biomedical Informatics (DBMI) to further develop the GRDR. The DBMI efforts will build in part on NIH’s Big Data to Knowledge and related initiatives.

September 2014

Patient Registries and The NIH/NCATS GRDR Program - An Interview with Yaffa Rubinstein

Rare Disease Report interviewed GRDR’s Yaffa Rubinstein, Ph.D., who explained the importance of the program in advancing knowledge about rare diseases.

Last updated: 08-15-2017
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