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Global Rare Diseases Patient Registry Data Repository

GRDR® in Action

August 2015

NCATS awarded a supplemental grant to the Harvard Medical School’s Department of Biomedical Informatics (DBMI) to further develop the GRDR. The DBMI efforts will build in part on NIH’s Big Data to Knowledge and related initiatives.

September 2014

Rare Disease Report interviewed GRDR’s Yaffa Rubinstein, Ph.D., who explained the importance of the program in advancing knowledge about rare diseases.