The 2016 Rare Disease Day at NIH was held on one of the rarest of days ― February 29 ― in order to raise awareness about these diseases, the people they affect, and research collaborations to address rare diseases challenges. With a slogan of “Patients & Researchers — Partners for Life,” the event brought together hundreds of rare disease patients, advocates, caregivers and researchers to discuss the latest in rare disease research advances.
Sponsored by NCATS and the NIH Clinical Center, the event featured powerful presentations, remarks by congressional and NIH leadership, posters and exhibits, tours of the Clinical Center and more. Event partners included the Food and Drug Administration (FDA) Office of Orphan Products Development and the FDA Center for Drug Evaluation and Research’s Rare Diseases Program, the National Organization for Rare Disorders, Genetic Alliance, Global Genes, the EveryLife Foundation for Rare Diseases, and Uplifting Athletes. View some of the photos from the 2016 Rare Disease Day at NIH: