Share Resources
NCATS Toolkit welcomes your patient group to submit resources that you found helpful at any stage of the therapy development process.
Share Your Resources with the NCATS Toolkit
The NCATS Toolkit needs your help to educate and empower patient groups!
We are looking for resources intended to help patient group leaders get started with research. We plan to include some of these resources in the NCATS Toolkit for Patient-Focused Therapy Development website to share across the rare disease patient community.
What are Resources?
Resources can be any type of information, such as tools, templates, examples, checklists, guidelines, processes, best practices and frameworks. Templates are preferred when it is possible to make them.
Resources can be in any format, such as links, Word documents, PDFs, spreadsheets, videos, emails, slide decks and images.
You can share resources that are already available online or your own resources.
We Want Resources for These Goals
Build Your Community
- Connect with other patient groups
- Make contact registries
- Provide information about clinical trials and encourage participation
Advance Research
- Find experts and interact with research partners
- Create scientific and medical advisory boards
- Organize conferences
- Make a biobank
How to Share Resources
If you have a resource for any of the goals listed above, please send resources to NCATS Toolkit. In your email, please identify the relevant goal for each resource.
Check back once in a while, because we will update our goals as we build our website.
Our team will review and select resources to include in the NCATS Toolkit. We may make changes to enable a resource to be more relevant to other patient groups.
Our Review Criteria
We will use the following review criteria for evaluating resources:
- Generalizability: Reusable by multiple patient groups
- Customizability: Adaptable to specific use cases
- Actionability: Has clear, concrete steps (not applicable to all resources)
- Uniqueness: Fills a need not already met by other resources and content
- Credibility: Created by patient groups, created for patient groups, and already used by patient groups
Thank you in advance for sharing resources! Patient groups like yours make the NCATS Toolkit better for the rare disease patient community.