Events
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Events
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Natural History Studies and Registries in the Development of Rare Disease Treatments
May 13, 2024 - Workshop
In-Person and Virtual workshop at the FDA White Oak campus, Great Room, from 10:00 a.m.-4:00 p.m. EDT. The Reagan-Udall Foundation for the Food and Drug Administration (FDA), in collaboration with FDA’s Rare Diseases Team within the Office of Rare Diseases, Pediatrics, Urologic and Reproductive Medicine; Office of New Drugs; Center for Drug Evaluation and Research and the National Institutes of Health’s Division of Rare Diseases Research Innovation within NCATS, is hosting a workshop to bring together rare disease patient advocates, academic researchers, regulated industry, and other key stakeholders to discuss considerations for the use of natural history study and registry data in rare disease drug development programs.
Technical Assistance Webinars for the Rare Diseases Clinical Research Network
May 22, 2024 - Webinar
Per NOT-TR-24-024, NCATS and participating ICs will hold pre-application technical assistance live webinars regarding applications in response to NOFO PAR-24-206 Rare Diseases Clinical Research Consortia (RDCRC) for the Rare Diseases Clinical Research Network (RDCRN) (U54 Clinical Trial Optional).
May 22 Webinar: 9-10:30 a.m. EDT
June 3 Webinar: 3-4:30 p.m. EDT
Advisory Council Meeting: May 2024
May 23, 2024 - Advisory Board
The NCATS Advisory Council will convene a virtual/in-person meeting on May 23, 2024. The meeting will feature presentations from NCATS Director Joni L. Rutter, Ph.D., and others about the center’s initiatives, policies, programs and future direction.
NIH Main Campus
Bldg. 35, Room 620/630
10:30 a.m. to 4:30 p.m.
Technical Assistance Webinars for the Rare Diseases Clinical Research Network
Jun 03, 2024 - Webinar
Per NOT-TR-24-024, NCATS and participating ICs will hold pre-application technical assistance live webinars regarding applications in response to NOFO PAR-24-206 Rare Diseases Clinical Research Consortia (RDCRC) for the Rare Diseases Clinical Research Network (RDCRN) (U54 Clinical Trial Optional).
May 22 Webinar: 9-10:30 a.m. EDT
June 3 Webinar: 3-4:30 p.m. EDT