General Program Contacts, Office of Rare Diseases Research

Area of Expertise

Name

Phone Number

Rare Diseases Clinical Research Network (RDCRN)

Tiina K. Urv, Ph.D.

(301) 827-2746

RDCRN/Coalition of Patient Advocacy Groups (RDCRN/CPAG)

Chris Griffin

(301) 496-0266

NCATS Genetic and Rare Diseases (GARD) Information Center  

Chris Griffin

(301) 496-0266

NCATS Toolkit for Patient-Focused Therapy Development 

Eric Sid, M.D., M.H.A.

(301) 827-3073

NCATS Rare Diseases Registry (RaDaR) Program

Eric Sid, M.D., M.H.A.

(301) 827-3073

NCATS Scientific Conferences

Anne Pariser, M.D.


(301) 402-4338
 

All Other Inquiries

NCATS Office of Rare Diseases Research

(301) 402-4336