General Program Contacts, Office of Rare Diseases Research

Contact the staff listed below for more information about the NCATS Office of Rare Diseases Research (ORDR).

General contact information: (301) 435-0916 or NCATS Office of Rare Diseases Research.

Stay connected with ORDR on Facebook and Twitter.

Area of Expertise

Contact

Phone Number

Clinical Trial Readiness Grants

Program Director: Alice Chen Grady, M.D.

(301) 827-2015

Genetic and Rare Diseases Information Center (GARD)

Program Director: Eric Sid, M.D., M.H.A.

Program Administrator: Jim Dickens

(301) 827-3073

(301) 827-9507

Genetic Therapies, General 

Program Director: Philip John (P.J.) Brooks, Ph.D.

Program Administrator: Deanna Portero

(301) 443-0513

 

(301) 451-9968

GRDR GUID (Global Unique Identifier)  

Program Director: Eric Sid, M.D., M.H.A.

(301) 827-3073

NCATS Scientific Conference Grants

Program Director: Anne Pariser, M.D.

(ORDR Director)

(301) 402-4338

NCATS Toolkit for Patient-Focused Therapy Development (Toolkit)

Program Director: Eric Sid, M.D., M.H.A.

Program Administrator: Jim Dickens

(301) 827-3073

(301) 827-9507

Non-Viral Technologies for in vivo Delivery of Genome Editors

Related funding opportunities:

  • SBIR: PAR-20-098 - R43/R44: Clinical Trial Not Allowed
  • STTR: PAR-20-109 - R41/R42: Clinical Trial Not Allowed

Program Director: Philip John (P.J.) Brooks, Ph.D.

(301) 443-0513

Rare Diseases Clinical Research Network (RDCRN)

Program Director: Tiina Urv, Ph.D.

Program Administrator: Meera Shah, M.P.H.

(301) 827-2746

(301) 827-6222

RDCRN Coalition of Patient Advocacy Groups (CPAG)

Program Director: Tiina Urv, Ph.D.

Program Administrator: Meera Shah, M.P.H.

(301) 827-2746

(301) 827-6222

Rare Disease Day at NIH

Program Director: Alice Chen Grady, M.D.

Program Administrator: Meera Shah, M.P.H.

(301) 827-2015

(301) 827-6222

Rare Diseases Registry Program (RaDaR)

Program Director: Eric Sid, M.D., M.H.A.

Program Administrator: Jim Dickens

 

(301) 827-3073

(301) 827-9507

Somatic Cell Genome Editing Program

Program Director: Philip John (P.J.) Brooks, Ph.D.

Program Administrator: Deanna Portero

 

(301) 443-0513

 

(301) 451-9968

Trans-NIH Rare Diseases Working Group

Program Director: Tiina Urv, Ph.D.

Program Administrator: Meera Shah, M.P.H.

(301) 827-2746

(301) 827-6222

All Other Inquiries

Program Administrator: Tierra Clarke

(301) 435-0916

Visit our rare disease research programs: