News & Events

NIH Rare Pair: Rare Disease Treatments Partnering Workshop

July 24, 2025 - July 25, 2025 - Workshop

Location: Mass General Brigham, Boston, Massachusetts

Join us for the NIH Rare Pair: Rare Disease Treatments Partnering Workshop, a pivotal event bringing together key contributors in the rare diseases ecosystem. Hosted by the National Institutes of Health (NIH), this workshop will take place July 24–25, 2025, at Mass General Brigham in Boston, Massachusetts.

This unique gathering will explore the rare diseases commercialization landscape from the diverse perspectives of industry leaders, private investors, government funders and patient advocacy organizations. Attendees will engage in dynamic panels and discussions addressing the challenges, opportunities and critical areas of interest in developing novel therapies for rare diseases.

Key highlights of the workshop include the following:

• Interactive Panels and Discussions: Gain insights into overcoming barriers and maximizing opportunities in the rare diseases treatment space.
• Rare Diseases Therapy Pitch Session: Listen to innovative NIH-supported investigators presenting cutting-edge treatments for rare diseases.
• Networking Opportunities: Build meaningful connections with researchers, investors and strategic partners driving advances in rare disease therapeutics.

Whether you’re a researcher, investor, advocate or industry professional, this workshop offers a unique opportunity to collaborate and accelerate the development of groundbreaking treatments for rare diseases.

Save the date and be part of the conversation that transforms ideas into treatments for patients with rare diseases.

Registration information and agenda will be coming soon.