In response to the urgent need for clinical information presented by the COVID-19 pandemic, NCATS and its partners developed the National COVID Cohort Collaborative (N3C) to collect clinical, laboratory and diagnostic data from hospitals and clinics and to make data accessible to researchers seeking to understand COVID-19.
Through N3C, NCATS has made data accessible to more than 3,000 researchers and clinicians to study the progression of COVID-19, identify risk and protective factors, search for effective treatments, understand the long-term disease effects, and determine how best to care for those with the disease.
Until a consultation with Tribal Nations can be held, NCATS has put additional privacy measures in place for American Indian and Alaska Native (AI/AN) data and ZIP codes associated with Tribal lands. These data currently are obscured until NCATS can consult with Tribal Leaders on the availability and use of these data.
A Tribal Consultation has been scheduled for February 11, 2022, at 1:30 p.m., Eastern Standard Time, to solicit input and recommendations on whether and how to appropriately make AI/AN data available to Tribal researchers and to the broader scientific research community.
Penny Burgoon, Ph.D.
Director, Office of Policy, Communications, and Education