News
Explore the latest stories and publications from NCATS and our partners, see upcoming events, or explore the variety of resources we provide to better understand translational science and our work.
News
Read the latest news from NCATS and its collaborators whose research is supported through the Center’s programs, or follow coverage of NCATS' translational research activities through national and local media.
Paving the Way for Ultrarare Bone Disease Treatment Trial
May 21, 2024 - NCATS News
- Our Impact on Drug Discovery and Development
- Therapeutics for Rare and Neglected Diseases (TRND)
Clinicians at the NIH Clinical Center will soon start testing an investigative drug for an ultrarare bone disease.
Read ArticleEveryLife Foundation Announces Scientific Workshop on ‘Ultra-Rare’ Diseases
May 16, 2024 - Media Coverage
- Our Impact on Rare Diseases
Study Suggests People with Rare Diseases Face Significantly Higher Health Care Costs
October 25, 2021 - Media Coverage
- Genetic and Rare Diseases (GARD) Information Center
NIH Study Suggests People with Rare Diseases Face Significantly Higher Health Care Costs
October 22, 2021 - NCATS News
Results from a collaborative pilot study suggest health care costs for each person with a rare disease are three to five times greater than the costs for those who do not have a rare disease.
Medical Cost for Rare Diseases on Par with Cancer, Heart Failure
October 22, 2021 - Grantee/Partner News
- Our Impact on Rare Diseases
Pandemic Research Lays Path Forward for Study of Rare Diseases
October 21, 2021 - Media Coverage
Long-Term CRYSVITA® ▼ (burosumab) Treatment Reduces the Burden of Disease in Adults with X-Linked Hypophosphataemia (XLH), a Rare Genetic Metabolic Bone Disease
September 24, 2021 - Grantee/Partner News
- Genetic and Rare Diseases (GARD) Information Center
Rare Leader: Shari Hume, Co-Founder, Cure JM Foundation
September 23, 2021 - Grantee/Partner News