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Research
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Media Coverage
In the Spotlight
Elkhorn Mom Fighting for Sons with Rare Disease Helps Researchers Win $1 Million Grant
Omaha World-Herald ∙ 09/30/2019 ∙ TRND
From the excitement in her voice, a listener would think Neena Nizar had just won a lottery jackpot big enough to buy two her young sons almost anything they wanted. Instead, the prize is a pending research agreement between the National Institutes of Health and Harvard Medical School. If finalized in the coming weeks, it would help further development of a possible treatment for the ultra-rare genetic condition the Elkhorn-area mom and her boys share.
October 2019
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Biogen Resurrects Alzheimer’s Drug for FDA Approval
CenterWatch ∙ 10/28/2019 ∙ Rare Diseases -
Brain Studies Show Chronic Fatigue Syndrome and Gulf War Illness are Distinct Conditions
HealthNewsDigest.com ∙ 10/24/2019 ∙ CTSA Program -
Enhanced Informatics Tool Could Help Better Identify Nonfatal Opioid Overdose Cases in the ED
News-Medical.net ∙ 10/24/2019 ∙ CTSA Program -
HudsonAlpha Wins $7 Million in NIH Funding for Project to Expand National Health Data
Business Alabama ∙ 10/24/2019 ∙ All of Us Research Program -
Genomics Research Effort to Use $8.5M Grant to Expand Data Sharing
Health Data Management ∙ 10/24/2019 ∙ Biomedical Data Translator -
The NCATS Universal Biomedical Data Translator
FierceBiotech ∙ 10/21/2019 ∙ Biomedical Data Translator -
New ‘Prime’ Genome Editor Could Surpass CRISPR
Science ∙ 10/21/2019 ∙ Somatic Cell Genome Editing -
Super-Precise New CRISPR Tool Could Tackle a Plethora of Genetic Diseases
Nature Research ∙ 10/21/2019 ∙ Somatic Cell Genome Editing -
New Ohio State Research Shows Vaping Can Cause Lung Inflammation in Non-Smokers
The Columbus Dispatch ∙ 10/16/2019 ∙ NCATS -
$37 Million Collaborative Grant to Support Research at UT Health Science Center at Tyler
Longview News-Journal ∙ 10/11/2019 ∙ CTSA Program -
Drug Tailored to One Girl with Brain Disease Paves Way for Similar Customized Treatments
Science ∙ 10/09/2019 ∙ NCATS -
Montana Molecular Wins NIH HEAL Initiative Awards to Advance Preclinical Biological Assays for Innovation in Pain and Addiction
NBC2 News ∙ 10/08/2019 ∙ ASPIRE, HEAL
September 2019
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Elkhorn Mom Fighting for Sons with Rare Disease Helps Researchers Win $1 Million Grant
Omaha World-Herald ∙ 09/30/2019 ∙ TRND -
Gene Editing Enables Researchers to Correct Mutation in Muscle Stem Cells in DMD Model
Stem Cells Portal ∙ 09/23/2019 ∙ Rare Diseases -
Some Anticancer Molecules Are Off Target
Chemical & Engineering News ∙ 09/16/2019 ∙ NCGC -
Overdose Death More Likely after Coming off Opioids for Pain
Futurity ∙ 09/06/2019 ∙ NCATS -
American Heart Association Says Former NFL Players May Face Higher Risk of Atrial Fibrillation
Clarksville Online ∙ 09/06/2019 ∙ CTSA Program -
No Longer Lost in Translation
PharmaVOICE.com ∙ 09/03/2019 ∙ NCATS
August 2019
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A Multi-Animal Model Collaboration to Speed Up Rare Disease Research
Lab Animal ∙ 08/26/2019 ∙ TRND -
Discovery of ‘Hidden’ Outbreak Hints that Zika Virus Can Spread Silently
ScienceBlog.com ∙ 08/26/2019 ∙ CTSA Program -
Concussions Linked to Sexual Health in Former NFL Players
ScienceBlog.com ∙ 08/26/2019 ∙ CTSA Program -
HIGH PROFILE: Dr. Cam Patterson Nourishes UAMS with Rock ’n’ Roll Fervor after Taking it on in a Bluesy Time
Arkansas Democrat-Gazette ∙ 08/25/2019 ∙ CTSA Program -
ISS Astronaut to Talk to Ill Children About Space Medical Research
ChildrensInn.org ∙ 08/16/2019 ∙ Tissue Chip -
For a decade, Francis Collins has shielded NIH—while making waves of his own
SCIENCE ∙ 08/16/2019 ∙ -
NIH All of Us Project Tops 270,000 Sign-Ups and on Track to Enrolling 1M Participants by 2024
TechaPeek ∙ 08/16/2019 ∙ NCATS, NIH -
The Peculiarity of Cancer Metastasis may be the Key to Controlling the Disease
WuXi AppTec ∙ 08/14/2019 ∙ NCATS, NCGC, NIH
July 2019
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NIH-Funded Project Aims to Build a ‘Google’ for Biomedical Data
STAT ∙ 07/31/2019 ∙ Biomedical Data Translator -
How an AI Expert Took on His Toughest Project Ever: Writing Code to Save His Son’s Life
STAT ∙ 07/25/2019 ∙ Biomedical Data Translator -
From NCATS to NASA: The Extraordinary Potential of Tissue Chips
Cell & Gene Therapy Insights ∙ 07/22/2019 ∙ Tissue Chip -
Don’t Make Me Turn This Research Around!
scienceexist ∙ 07/20/2019 ∙ CTSA Program -
Novel targets for itch treatment (Note: Subscription Required)
Nature.com ∙ 07/19/2019 ∙ ADST -
UVA / Tech / Carilion Health Institute Receives $23 Million to Speed New Treatments
TheRoanokeStar.com ∙ 07/19/2019 ∙ CTSA Program -
Selma Blair Reveals She’s Getting ‘Seemingly Sicker’ With MS in Emotional New Post
msn lifestyle ∙ 07/18/2019 ∙ GARD -
Image of the Day: Itch to Scratch
The Scientist ∙ 07/17/2019 ∙ ADST -
After Concussion, Biomarkers in the Blood May Help Predict Recovery Time
HealthNewsDigest.com ∙ 07/05/2019 ∙ NCATS -
Biobusiness Consulting to Prepare Scientists for Industry Careers
Nature Biotechnology ∙ 07/02/2019 ∙ CTSA Program
June 2019
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NCATS: Getting Insights Through the Risky "Middle Zone" to Drug Development
American Journal of Managed Care ∙ 06/19/2019 ∙ BrIDGs, NCATS, New Therapeutic Uses, Rare Diseases -
Long Island Scientists Work to Repurpose Old Medicines for New Uses
Newsday ∙ 06/18/2019 ∙ NCATS -
Scientists Recreate Blood-Brain Barrier Defect Outside the Body
HealthNewsDigest.com ∙ 06/06/2019 ∙ Tissue Chip -
SpaceX Cargo Spacecraft Splashes Down in Pacific Ocean with Scientific Research
Exploring Space ∙ 06/04/2019 ∙ Tissue Chip
May 2019
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Premature Death from Heart Failure Is on the Rise
Futurity ∙ 05/29/2019 ∙ CTSA Program -
Will Flu’s ‘Hidden Target’ Lead to a Universal Vaccine?
Futurity ∙ 05/28/2019 ∙ CTSA Program -
Agency Unveils RaDaR to Help Patient Groups Develop Rare Disease Registries
ALS News Today ∙ 05/24/2019 ∙ Rare Diseases -
Shelby Announces $50 Million UAB Grant from NIH for Translational Science
Alabama Political Reporter ∙ 05/20/2019 ∙ CTSA Program -
Rare Diseases Constitute a ‘Public Health Issue,’ NCATS Director Warns
Pulmonary Hypertension News ∙ 05/16/2019 ∙ Rare Diseases -
Jenny Reardon Participates in Vatican Workshop on Personalized Medicine
Santa Cruz Tech Beat ∙ 05/14/2019 ∙ NCATS -
In This Doctor’s Office, a Physical Exam Like No Other
The New York Times ∙ 05/08/2019 ∙ CTSA Program -
Tissue Chips Sent In Space To Analyze Aging-Related Conditions On Earth
Biotecnika ∙ 05/06/2019 ∙ Tissue Chip -
You’ve Heard of ‘Organs on a Chip.’ Now ‘Tissue Chips in Space’ Test Conditions in Microgravity
STAT ∙ 05/06/2019 ∙ Tissue Chip -
Need to Model Aging in a Hurry? Do It in Outer Space
Awesome Investors ∙ 05/05/2019 ∙ Tissue Chip -
SpaceX Launches Unpiloted Dragon Cargo Ship to Space Station
CBSNews ∙ 05/04/2019 ∙ Tissue Chip -
SpaceX Is Launching 'Organs on a Chip' to the ISS
WIRED ∙ 05/03/2019 ∙ Tissue Chip -
SpaceX Will Launch Human Tissue Into Microgravity
Daily Beast ∙ 05/03/2019 ∙ Tissue Chip -
Woman With Rare Genetic Condition Advocates for Disabled and Shares Fitness Tips
People ∙ 05/02/2019 ∙ GARD -
News Conference on the SpaceX CRS-17 Space Station Cargo Mission Pre-Launch
Fox News ∙ 05/02/2019 ∙ Tissue Chip -
Living Bits of Human Organs Are Headed to the International Space Station
Inverse ∙ 05/02/2019 ∙ Tissue Chip -
Q&A: Organs on a Chip Head to the International Space Station
The Scientist ∙ 05/01/2019 ∙ Tissue Chip -
NIH Taps StemoniX's Organ-on-a-Chip for Opioid, Addiction Research
FierceBiotech ∙ 05/01/2019 ∙ Tissue Chip -
NASA is Sending Diseased ‘Living Human Organs’ on Micro-Chips up to the ISS to Test Sickness in Space
The Sun ∙ 05/01/2019 ∙ Tissue Chip
April 2019
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Weird Science: Nanoparticles, Algae and Organs on Chips to Launch on SpaceX Dragon
Space.com ∙ 04/30/2019 ∙ Tissue Chip -
'Organs on Chips' Set for Launch to the International Space Station
Fox News ∙ 04/30/2019 ∙ Tissue Chip -
SpaceX CRS-17 to Deliver Research Projects Impacting Life on Earth to the I.S.S.
Cheddar ∙ 04/30/2019 ∙ Tissue Chip -
After Accident, SpaceX Plans to Launch to the ISS Wednesday Carrying 3,728 Pounds of Science
Orlando Sentinel ∙ 04/29/2019 ∙ Tissue Chip -
Ready for Sonic Booms? NASA, SpaceX Targeting Early Morning for Falcon 9 Launch from Cape
Florida Today ∙ 04/29/2019 ∙ Tissue Chip -
SpaceX Falcon 9: Why Everyone Should Wake Up to Watch This Rocket Launch
Florida Today ∙ 04/26/2019 ∙ Tissue Chip -
NASA to Broadcast Next Space Station Resupply Launch, Prelaunch Activities
Mirage News ∙ 04/25/2019 ∙ Tissue Chip -
Doctors Use HIV to Develop 'Cure' for Babies with 'Bubble Boy' Disease
CNN ∙ 04/18/2019 ∙ RDCRN
March 2019
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Measuring Differences in Brain Chemicals in People with Mild Memory Problems
ScienceDaily ∙ 03/19/2019 ∙ CTSA Program -
Artificial Intelligence Tools Could Benefit Chemists with Disabilities. So Why Aren’t They?
Chemical & Engineering News ∙ 03/18/2019 ∙ NCATS -
Team Led by Rutgers Win 29 Million US Dollars NIH Grant
Health Gazette ∙ 03/13/2019 ∙ CTSA Program -
Vaccine Candidate for HER2 Breast Cancer Shows Promise at Duke
Precision Vax LLC ∙ 03/13/2019 ∙ CTSA Program -
With Positive Phase 2, Neurocrine Eyes Pivotal Trial for Rare Disease Drug
FierceBiotech ∙ 03/12/2019 ∙ GARD -
Rutgers-Led Team Awarded $29M National Health Grant
TAPinto.net ∙ 03/12/2019 ∙ CTSA Program -
Anti-Aging Mechanism May Hold Key to ‘Perfect’ Osteoporosis Treatment
Healio ∙ 03/12/2019 ∙ CTSA Program -
Resuming Human Spaceflight Means Health in Space a Priority
Federal News Network ∙ 03/11/2019 ∙ NCGC -
NIH Rare Disease Day Highlights Joint Networks Advancing Compelling Clinical Research
TrialSiteNews ∙ 03/08/2019 ∙ Rare Diseases -
NIH Awards Virginia Health Orgs $23M for Precision Med, Pop Health Innovation
Healthcare IT News ∙ 03/06/2019 ∙ CTSA Program -
NIH Hosts Rare Disease Day; Countries Around World Stage Similar Events Marking Significance of 7,000 Individually Rare Diseases That, When Taken Together, Afflict Over 400 Million People; Many Are Grievously Affected Children with Genetic Diseases
BioQuick News ∙ 03/05/2019 ∙ Rare Diseases -
Broken-Heart Syndrome May Stem from the Brain
Live Science ∙ 03/05/2019 ∙ GARD -
Feverish Toddler Diagnosed with Ovarian Cancer after Doctors Tell Mom 'It's Gas'
Daily News ∙ 03/05/2019 ∙ GARD -
Virginia Tech, UVa, Carilion and Inova Partner to Win $23 Million NIH Grant
GoDanRiver.com ∙ 03/05/2019 ∙ CTSA Program -
12 Things You Should Know about People with Rare Diseases, from Someone with Hereditary Multiple Exostoses
Odyssey ∙ 03/05/2019 ∙ GARD -
Children's National Competes in STAT Madness for Second Consecutive Year
BioSpace ∙ 03/04/2019 ∙ CTSA Program -
A Recap of Rare Disease Week on Capitol Hill
Pain News Network ∙ 03/04/2019 ∙ Rare Diseases -
How Does a 2-Year-Old Get Ovarian Cancer? Doctors Explain
Health ∙ 03/01/2019 ∙ GARD -
MURDOCK Study Celebrates 10th Anniversary
Independent Tribune ∙ 03/01/2019 ∙ CTSA Program -
The Benefits of Sleeping in at the Weekend Don't Last, and Doing So Could Even Be Bad for Your Health
Insider ∙ 03/01/2019 ∙ CTSA Program
February 2019
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Vapers May Be Twice as Likely to Wheeze
Futurity ∙ 02/28/2019 ∙ CTSA Program -
‘Show-Your-Rare’ on Rare Disease Day 2019
Precision Vax LLC ∙ 02/28/2019 ∙ Rare Diseases -
Genetic Defect Associated with Pediatric Liver Disease Recognized
The Industry News Wire ∙ 02/28/2019 ∙ CTSA Program -
NIH Rare Disease Day: Research Brings Hope
Clinical Leader ∙ 02/28/2019 ∙ Rare Diseases -
The Children’s Inn at NIH Celebrates Rare Disease Day
MyMCMedia ∙ 02/28/2019 ∙ Rare Diseases -
Are Hip Fractures a Flag for Alzheimer’s?
Futurity ∙ 02/26/2019 ∙ CTSA Program -
Rare Diseases Aren't as Rare as They Seem
CrossTalk ∙ 02/26/2019 ∙ RDCRN -
Higher O2 Sats with Bag-Mask Ventilation during Intubation Saves Lives
Specialty Medical Dialogues ∙ 02/20/2019 ∙ CTSA Program -
FDA & NIH-Funded Study Finds Genetic Vulnerability to Menthol Cigarette Use
BioSpectrum ∙ 02/19/2019 ∙ CTSA Program -
CRISPR/Cas9 Therapy Can Suppress Aging, Enhance Health and Extend Life Span in Mice
ScienceDaily ∙ 02/19/2019 ∙ RNAi -
CNN Chief Medical Correspondent Dr. Sanjay Gupta to Keynote 8th Annual International Space Station Research and Development Conference
SpaceRef ∙ 02/19/2019 ∙ Tissue Chip -
Tiny Organs in Orbit
Scientific American ∙ 02/04/2019 ∙ Tissue Chip -
Laughter May Be Best Medicine -- for Brain Surgery
ScienceDaily ∙ 02/04/2019 ∙ CTSA Program
January 2019
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FDA Revising ‘Draft Guidance’ on Developing Treatments for Rare Diseases
Hemophilia News Today ∙ 01/30/2019 ∙ RDCRN -
What to Know about 'Tree Man' Syndrome
ABC News ∙ 01/28/2019 ∙ GARD -
How "Bodies on a Chip" Can Transform Animal Welfare
BBC News ∙ 01/25/2019 ∙ Tissue Chip -
Lysosomal Acid Lipase Deficiency Financial Assistance Program Launched by The Assistance Fund
Associated Press ∙ 01/25/2019 ∙ GARD -
How “Bodies on a Chip” Can Transform Animal Welfare
BBC Future ∙ 01/25/2019 ∙ CTSA Program -
Tackling a Common Problem for Astronauts and the Elderly: Loneliness
Politico ∙ 01/25/2019 ∙ Tissue Chip -
Diabetic Pain Study at UAMS Enrolling Participants to Test Device
Pine Bluff Commercial ∙ 01/24/2019 ∙ CTSA Program -
Low-Sugar Diet Effective in Boys with Nonalcoholic Fatty Liver Disease
ScienceBlog ∙ 01/23/2019 ∙ CTSA Program -
Health Care: Kansas Universities Involved in Wide-Ranging Medical Research
Leavenworth Times ∙ 01/20/2019 ∙ CTSA Program -
Roy High Teen Fights an 'Invisible' Disability
Standard-Examiner ∙ 01/20/2019 ∙ GARD -
A Baby Girl Who 'Never Stops Smiling' Is Living with a Rare Condition That Makes Her Skin Crack
INSIDER ∙ 01/17/2019 ∙ GARD -
Gastric Bypass Surgery May Benefit Muscle Strength More than Previously Thought
ScienceDaily ∙ 01/16/2019 ∙ CTSA Program -
Instagram Star Opens Up about Her Struggles with Rare Disorder where Muscle Turns to Bone
Fox News ∙ 01/13/2019 ∙ GARD -
New Intestinal Microbiome Changes after Bariatric Surgery
MedicalResearch.com ∙ 01/11/2019 ∙ CTSA Program -
Can More ‘Flags’ Help CRISPR Treat Duchenne Muscular Dystrophy?
Futurity ∙ 01/10/2019 ∙ NCATS -
In Small Case Series, Tocilizumab Shows Promise for New-Onset Refractory Status Epilepticus
Neurology Today ∙ 01/10/2019 ∙ GARD -
Opioid-related Deaths Increase Nearly 300% in Kids, Teens
Healio ∙ 01/09/2019 ∙ NCATS -
PharmaBoardroom Interview with P.J. Brooks, Ph.D.
PharmaBoardroom ∙ 01/04/2019 ∙ Rare Diseases -
To Treat Daughter’s Rare Genetic Disease, Israeli Parents Race to Invent a Cure
Times of Israel ∙ 01/02/2019 ∙ GARD -
Opioid Poisoning Killed 9,000 U.S. Kids in 20 Years
Futurity ∙ 01/02/2019 ∙ CTSA Program -
How Personalized Medicine Is Transforming Your Health Care
National Geographic ∙ 01/01/2019 ∙ Tissue Chip
December 2018
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Working on a 2019 ‘To Do’ list? Here is President Trump’s 2018 ‘Done’ List
World Tribune ∙ 12/31/2018 ∙ HEAL -
Seeking Better Pain Management, VT Scientists Test New Potential Drug
WVTF ∙ 12/26/2018 ∙ NCATS
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Biogen Resurrects Alzheimer’s Drug for FDA Approval
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