Media Coverage | National Center for Advancing Translational Sciences

Skip to main content

U.S. Department of Health & Human Services

National Institutes of Health

In the Spotlight

Amber Olsen holding daughter Willow

Huffington Post ∙ 10/26/2018 ∙ Rare Diseases

Amber Olsen is racing against time to fund a gene therapy that might save her dying 5-year-old from a rare genetic disease. As part of her journey, she consulted NCATS Toolkit for Patient-Focused Therapy Development for advice on how to start a foundation, generate funding and support research.

November 2018

Cystic Fibrosis Patients May Need Higher Doses of Antibiotics to Clear Lung Infections
MedicalResearch.com ∙ 11/08/2018 ∙ CTSA Program
Study Shows Patients with CKD and Care Providers Are at Odds over Life Goals
Healio ∙ 11/06/2018 ∙ CTSA Program
College Athlete Dies of Rare Bacterial Illness Called 'Forgotten Disease'
Life Science ∙ 11/03/2018 ∙ GARD
Kansas State University Rower Dies from Rare Bacterial Infection
FOX News Network ∙ 11/01/2018 ∙ GARD

October 2018

Fragile X Added to Newborn Screening in North Carolina Through New Study
Fragile X News Today ∙ 10/30/2018 ∙ CTSA Program
What Is VLCAD? Cheyenne’s Daughter On ‘Teen Mom OG’ Has the Serious Condition
Romper ∙ 10/29/2018 ∙ GARD
#NORDSummit – Major Issues on Table for Rare Disease Patients in US as Midterm Elections Approach
Huntington’s Disease News ∙ 10/29/2018 ∙ RDCRN
A Brutal Clock
Huffington Post ∙ 10/26/2018 ∙ Rare Diseases
Get Involved in the Rare Diseases Are Not Rare! Challenge
Patient Worthy ∙ 10/26/2018 ∙ Rare Diseases
Series of Human Physiology Projects Selected by NCATS, NIBIB for International Space Station Research
SpaceRef ∙ 10/24/2018 ∙ Tissue Chip
Two Sick Children and a $1.5 Million Bill: One Family’s Race for a Gene Therapy Cure
MIT Technology Review ∙ 10/23/2018 ∙ Rare Diseases
St. Jude Researchers Receive 'High-Risk, High-Reward' Grants
The Daily Memphian ∙ 10/16/2018 ∙ Somatic Cell Genome Editing
OSU: Big Data Helping Improve Diagnoses, Treatment
KTVZ ∙ 10/10/2018 ∙ Biomedical Data Translator
Gastric Banding as Effective as Medication in Slowing Prediabetes; Type 2 Diabetes
dLife ∙ 10/09/2018 ∙ CTSA Program
IU Researcher Receives Grant for Startup
Inside Indiana Business ∙ 10/08/2018 ∙ SBIR/STIR
Insmed Gets FDA Approval for First Mycobacterium Avium Complex (MAC) Lung Disease Therapy
Equities.com ∙ 10/04/2018 ∙ GARD
NIH Director: US Needs More Treatments for Opioid Addiction, Chronic Pain Oct
USA Today ∙ 10/03/2018 ∙ Tissue Chip

September 2018

With $7M Contract, NIH Taps Big Data Analysis Platform Palantir to Streamline Health Research
MobiHealthNews ∙ 09/24/2018 ∙ NCATS
National Institutes of Health Awards Palantir with Contract to Advance Critical Health Research
OA Online ∙ 09/21/2018 ∙ NCATS
#NORDSummit – More Than 700 Expected to Attend Oct. 15-16 Rare Disease Summit in Washington
Huntington’s Disease News ∙ 09/21/2018 ∙ NCATS
The Businessman 'Allergic' to the SUN: 30-Year-Old Battling a One-in-a-Million Condition Has Spent All His Life Avoiding Daylight
Daily Mail UK ∙ 09/21/2018 ∙ NCATS, Rare Diseases
Transdermal Nicotine Boosts Mood and Cognitive Function in Late-Life Depression
Psychiatry Advisor ∙ 09/18/2018 ∙ CTSA Program
Repurposing Existing Drugs Could Let Us Treat Intractable Illnesses
Scientific American ∙ 09/18/2018 ∙ NCATS
Antibiotic Combos Using Four to Five Drugs Effective Against E. coli
Healio (subscription required) ∙ 09/18/2018 ∙ NCATS
Persistent Mutations in Bone Marrow Associated with Poor Myelodysplastic Syndrome Outcomes
Healio (subscription required) ∙ 09/14/2018 ∙ CTSA Program
Researchers Share Mass Screening Method against NSD2 Cancer Target
Drug Target Review ∙ 09/07/2018 ∙ NCGC
Scanning Thousands of Molecules against an Elusive Cancer Target
MD Linx ∙ 09/06/2018 ∙ NCGC
Surprising Tactic in War Vs. Antibiotic Resistance
WebMD ∙ 09/05/2018 ∙ CTSA Program
8,000 New Antibiotic Combinations are Surprisingly Effective
R&D Magazine ∙ 09/04/2018 ∙ NCATS
Musculoskeletal Pain Did Not Improve with Use of Mobile Health App
Healio (subscription required) ∙ 09/04/2018 ∙ CTSA Program
8,000 new antibiotic combinations are surprisingly effective
ScienceDaily ∙ 09/03/2018 ∙ NCATS
Low Muscle Mass in Men Associated with Poor Physical Performance, Mobility Limitations
Healio (subscription required) ∙ 09/01/2018 ∙ NCATS

August 2018

NIH Awards UNC-CH $58.1 Million to Help Move Scientific Discoveries from Labs to Practice
WRAL TechWire ∙ 08/30/2018 ∙ CTSA Program
How Effective Are Medications for Opioid Addictions after Overdoses?
Medical News Bulletin ∙ 08/28/2018 ∙ NCATS
Vascular Access and Antithrombotic Therapy in Patients with Acute Coronary Syndrome
Genetic Engineering & Biotechnology News ∙ 08/25/2018 ∙ CTSA Program
Just 21 People Are Known to Have This Rare Genetic Condition. Can You Help Us Find More?
The New York Times Magazine ∙ 08/23/2018 ∙ GARD
Baby Feces May Be Source of Beneficial Probiotics
ScienceDaily ∙ 08/23/2018 ∙ CTSA Program
Tufts Researchers Win Grant to Study Integration of Genomic Sequencing into Neonatal Care
News-Medical.Net ∙ 08/15/2018 ∙ CTSA Program
New Blood Test Can Rule Out Heart Attack Faster
MedTech Dive ∙ 08/07/2018 ∙ CTSA Program
Wearable ECG Monitor Diagnoses AFib Better than Usual Monitoring, Study Finds
MDLinx ∙ 08/07/2018 ∙ CTSA Program
For iRhythm, two New JAMA Studies Could Translate to Big Sales
MobiHealthNews ∙ 08/06/2018 ∙ CTSA Program
Primetime Entered into a CRADA with NIH/NCATS to Develop Antimicrobial Agents for Antimicrobial Resistant Infections
EIN Presswire ∙ 08/03/2018 ∙ ADST
This Boy’s Parents Won’t Stop Looking for A Cure For ‘Stiff Skin Syndrome’ That’s Turning Him into Stone
Twin Falls Times-News ∙ 08/02/2018 ∙ GARD

July 2018

What Caused This Man's Scalloped Pupil?
LiveScience ∙ 07/31/2018 ∙ GARD
How Do You Know If Your Cut Has Flesh-Eating Bacteria?
Live Science ∙ 07/31/2018 ∙ GARD
What is Xeroderma Pigmentosum?
Daily Mail ∙ 07/29/2018 ∙ NCATS
K9s For Warriors - Because Together We Stand
ConsumersAdvocate.org ∙ 07/17/2018 ∙ CTSA Program
Organs-on-Chips Take Flight
Genetic Engineering & Biotechnology News ∙ 07/17/2018 ∙ Tissue Chip
Wearable Heart Monitor Catches Undiagnosed Atrial Fibrillation, JAMA Study Finds
San Diego Union-Tribune ∙ 07/12/2018 ∙ CTSA Program
STSI Study Finds mHealth Wearable Effective in Detecting AFib
mHealth Intelligence ∙ 07/11/2018 ∙ CTSA Program
Savory Foods May Promote Healthy Eating through Effects on the Brain
ScienceDaily ∙ 07/06/2018 ∙ CTSA Program
Indiana CTSI Lands $33M Grant to Improve Health
Inside INdiana Business ∙ 07/02/2018 ∙ CTSA Program

June 2018

Diabetes, Obesity Drug Shows Promise in Alcoholism
Medi Bulletin ∙ 06/30/2018 ∙ NCATS
Kingston Alcohol Abuse Treatment Research Shows Promise
Addiction Now ∙ 06/30/2018 ∙ NCATS
Rising Occurrence of Different Disorders to Bolster Global Regenerative Medicines Market
ZMR Blog ∙ 06/27/2018 ∙ Stem Cell Technology
HEALTH SENTINEL: Do You Want to Be All In on Good Health?
News Sentinel ∙ 06/27/2018 ∙ CTSA Program
Senate Panel Proposes $2 Billion, 5.4% Increase for NIH
Science Magazine ∙ 06/26/2018 ∙ CTSA Program
Citywide Collaboration Awarded $46 Million Grant to Improve Regional Health
Crain's Cleveland Business ∙ 06/26/2018 ∙ CTSA Program
$33M Grant to Help Improve Health in Indiana
WSCH FM ∙ 06/22/2018 ∙ CTSA Program
Label-free Drug Discovery Solutions Provider Receives Grant from NIH
European Pharmaceutical Manufacturer ∙ 06/21/2018 ∙ SBIR/STIR
NIH Funded Study Finds Methadone and Buprenorphine Reduce Risk of Death after Opioid Overdose
Pharmabiz.com ∙ 06/21/2018 ∙ CTSA Program
Effective Treatment to Reduce Death Risk After Opioid Overdose Confirmed, Underutilized
Laboratory Equipment ∙ 06/20/2018 ∙ CTSA Program
Biomaterials Research Case Study
Scientist Live ∙ 06/20/2018 ∙ CTSA Program
Medication Assisted Treatment Reduces Risk of Overdose Death
Register Herald ∙ 06/20/2018 ∙ CTSA Program
Bad Habits That Lead to Cancer, Chronic Disease Corrected by Simple Lifestyle Intervention
ScienceDaily ∙ 06/19/2018 ∙ CTSA Program
SAMDI Tech Inc. Awarded Phase I Small Business Innovation Research Grant From NIH
Odessa American ∙ 06/19/2018 ∙ SBIR/STIR
Meta on Data: How NIH Plans to Modernize Its Approach to Big Data
BioCentury ∙ 06/14/2018 ∙ Biomedical Data Translator
Panelists: Cloud Enables Broader IT Modernization
MeriTalk ∙ 06/08/2018 ∙ NCATS
Intermittent Fasting Benefits May Also Include Healthier Blood Pressure, On Top Of Weight Loss
Tech Times ∙ 06/03/2018 ∙ CTSA Program
Battling the Opioid Crisis through Translational Science
WXXI News ∙ 06/03/2018 ∙ CTSA Program
Surveys Details Reasons Mitochondrial Disease Patients Take Part – or Don’t – in Clinical Trials
Mitochondrial Disease News ∙ 06/01/2018 ∙ RDCRN

May 2018

Organs-on-Chips: Tiny Technology Helping Bring Safe New Drugs to Patients Faster
The Conversation ∙ 05/30/2018 ∙ Tissue Chip
Gene Therapy Ever More Common for Rare Disorders
Genetic Engineering & Biotechnology News ∙ 05/29/2018 ∙ Rare Diseases, TRND
Babies with Prader-Willi Syndrome Have Higher Rate of Perinatal Complications
Prader-Willi Syndrome News ∙ 05/24/2018 ∙ RDCRN
Cambridge Research Biochemicals Supports Evaluation of New Fuchs Dystrophy Treatment
EPM Magazine ∙ 05/23/2018 ∙ TRND
Indiana Research Institute Receives $33mn Grant to Improve Health
Healthcare Global ∙ 05/23/2018 ∙ CTSA Program
Hoosier Health to Get Boost from $33M Grant to Indiana Institute
The Indianapolis Star ∙ 05/22/2018 ∙ CTSA Program
VCU Receives $21.5 Million Grant to Bring Research to Patients
Richmond Times-Dispatch ∙ 05/21/2018 ∙ CTSA Program
This 'Metastasis-Blocking' Compound May Stop the Spread of Cancer
Medical News Today ∙ 05/18/2018 ∙ NCGC
How Graphene and Gold Could Help Us Test Drugs and Monitor Cancer
The Verge ∙ 05/18/2018 ∙ SBIR/STIR
Blood Type A People Need a ‘Travelers Diarrhea” Vaccine
Precision Vaccinations ∙ 05/18/2018 ∙ CTSA Program
RNA Interference Therapies Could Be on the Cusp of Success
The Pharmaceutical Journal ∙ 05/17/2018 ∙ RNAi
US Researchers Discover Ways to Block Cancer from Metastasizing
We Are The Mighty ∙ 05/17/2018 ∙ NCATS
Healthy Community Partnership Presents Research on Social Networks
Post Bulletin ∙ 05/17/2018 ∙ NCATS
Scientists Identify New Compound to Stop Cancer Spread
Xinhuanet ∙ 05/17/2018 ∙ NCATS
Study: Researchers Devise Approach to Stop Cancer from Spreading
Chicago Tonight ∙ 05/16/2018 ∙ NCATS
Organ-on-Chip Tech Could Lead to New Drug Candidates for ALS, Parkinson’s Disease
R&D Magazine ∙ 05/16/2018 ∙ Tissue Chip
Healthy Community Partnership Presents Research on Social Networks
Post Bulletin ∙ 05/14/2018 ∙ NCATS
Viagra and many other drugs were discovered by chance. Now science is hoping to change that.
The Washington Post ∙ 05/13/2018 ∙ New Therapeutic Uses
HIV Has a 'Long Lost' Cousin: What You Should Know About This Virus
Live Science ∙ 05/08/2018 ∙ GARD
Scientists Uncover Three Distinct Subtypes of Eosinophilic Esophagitis which Lead to Develop Personalised Medical Therapies to Treat Food Allergies
Pharmabiz ∙ 05/04/2018 ∙ RDCRN
Congressman Announces $3 Million Grant for VCU Research
WRIC ∙ 05/03/2018 ∙ CTSA Program
Scripps Translational Science Institute Gets $34 Million for Digital, Genomic Health Care
San Diego Union Tribune ∙ 05/01/2018 ∙ CTSA Program

April 2018

Data Science, AI, Genomics, & Much More: A Preview of #BioIT18
BioIT World ∙ 04/16/2018 ∙ Biomedical Data Translator
NIH Agency Pioneers Collaborative Research into Rare Diseases
Pulmonary Fibrosis News ∙ 04/12/2018 ∙ GARD, Rare Diseases, RDCRN
UIHC Receives Grant Renewal to Expand Research
The Daily Iowan ∙ 04/12/2018 ∙ CTSA Program
U of M Institute with a ‘Bench-to-Bedside’ Mission Receives $42.6M Grant
Twin Cities Business ∙ 04/09/2018 ∙ CTSA Program
UI Receives $21 Million Health Research Grant
Business Record ∙ 04/06/2018 ∙ CTSA Program
The 'China Doll' Boy: Six-Year-Old, Who Has Broken His Bones More Than 500 Times, Suffers Fractures Even Hugging His Siblings or Smiling at His Mother
Daily Mail ∙ 04/04/2018 ∙ NCATS
Woman's Bones Vanish Before Doctors' Eyes
Live Science ∙ 04/04/2018 ∙ GARD
A New Treatment for Pompe Disease Reaches Clinical Trials Stage
Patient Worthy ∙ 04/03/2018 ∙ TRND
Researchers Getting Smarter About Pairing Cancer Treatments
The Scientist ∙ 04/01/2018 ∙ NCGC

March 2018

New Data Suggest Enzyme Blockage Could Fight HD
Rare Disease Report ∙ 03/30/2018 ∙ NCATS
NIH Breaks Down Rare Research Funding Prioritization
Patient Worthy ∙ 03/28/2018 ∙ NIH, Rare Diseases
NIH Discusses How Rare Advocacy Groups Can Fund Research and Answers More Questions
Patient Worthy ∙ 03/28/2018 ∙ NCATS, NIH, Rare Diseases
Targeting Enzyme to Reduce Mutant Protein Levels May Be New Strategy to Fight Huntington’s, Study Says
Huntington’s Disease News ∙ 03/27/2018 ∙ NCGC
College Athletes Helping to Make Sports Safer for All
The Herald Sun ∙ 03/23/2018 ∙ CTSA Program
Digging out the Data to Repurpose Drugs
BioTechniques ∙ 03/21/2018 ∙ New Therapeutic Uses
Islet Transplantation Improves Quality of Life for People with Hard-to-Control Type 1 Diabetes
Imperial Valley News ∙ 03/21/2018 ∙ CTSA Program
Information is Key to Tackling Rare Diseases
R&D Magazine ∙ 03/20/2018 ∙ GARD, Rare Diseases
In Vitro Veritas: Biosensors and Microarrays Come to Life
Science ∙ 03/14/2018 ∙ Tissue Chip
Unraveling the Complexity of 3D Cell-Based Models
Lab Manager ∙ 03/08/2018 ∙ 3-D Modeling
Rare Disease Day at the NIH
Patient Worthy ∙ 03/07/2018 ∙ NCATS, NIH, Rare Diseases
NIH Panel Features Experiences of Young Adults in Rare Disease Community
American Journal of Managed Care ∙ 03/05/2018 ∙ NCATS, NIH, Rare Diseases

February 2018

Rare Diseases May Be Little Seen, but They Have a Day of Their Own
The Washington Post ∙ 02/24/2018 ∙ GARD, Rare Diseases
What's Behind Toddler's Extremely Rare Water Allergy?
Live Science ∙ 02/23/2018 ∙ GARD, Rare Diseases
Bluffton Student Interns with National Institutes of Health Branch
limaohio.com ∙ 02/22/2018 ∙ NCATS
Preventing the Misdiagnosis of Cellulitis
ScienceDaily ∙ 02/20/2018 ∙ CTSA Program
Low-Fat or Low-Carb? It's a Draw, Study Finds
ScienceDaily ∙ 02/20/2018 ∙ CTSA Program
Patient Advocacy Groups Worldwide Plan Events to Mark Rare Disease Day, Feb. 28
Friedreich’s Ataxia News ∙ 02/20/2018 ∙ NCATS, Rare Diseases
Asthma-prone Infants Aided by Gut-boosting Probiotic: Study
NutraIngredients.com ∙ 02/20/2018 ∙ CTSA Program
Site Accreditation Could Improve the Efficiency of Clinical Trials
The Daily Texan ∙ 02/12/2018 ∙ NCATS
HHS Sets Its Sights on IT Modernization
FedTech ∙ 02/02/2018 ∙ NCATS

January 2018

“Maybe This Generation Here Could Help the Next Generation”: Older African American Women's Perceptions on Information Sharing to Improve Health in Younger Generations
Healio ∙ 01/26/2018 ∙ CTSA Program
NIH Commits $190M to Somatic Gene-Editing Tools/Tech Research
Genetic Engineering & Biotechnology News ∙ 01/24/2018 ∙ NCATS, NIH
Organs-on-Chips and Animal Lovers: Dovetailing on the Medical Frontier
The Microfluidic Circle ∙ 01/24/2018 ∙ Tissue Chip
NIH to Plow $190M into Genome Editing Therapy Drive
FierceBiotech ∙ 01/24/2018 ∙ NCATS, NIH
Cavity Prevention Approach Effectively Reduces Tooth Decay
ScienceDaily ∙ 01/22/2018 ∙ NCATS
Glimmers in Illuminating the Druggable Genome
Nature Reviews Drug Discovery ∙ 01/19/2018 ∙ IDG
Researchers Identify New Potential Drug Target for Huntington's Disease
Medical Xpress ∙ 01/12/2018 ∙ NCGC
University of Kansas To Receive $25 Million Grant for Clinical Research
KCUR ∙ 01/08/2018 ∙ CTSA Program
Office of Rare Diseases Research
Exceptional Parent Magazine ∙ 01/01/2018 ∙ GARD, Rare Diseases

December 2017

Johns Hopkins, Other Organizations Receive $25M to Create National Center for Data to Health
MedCity News ∙ 12/31/2017 ∙ CTSA Program
Study May Explain Link between Hearing Loss, Cancer Drug
ctpost ∙ 12/19/2017 ∙ NCATS
Direct Amygdala Stimulation Can Enhance Human Memory for a Day
ScienceDaily ∙ 12/18/2017 ∙ CTSA Program