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Rare Diseases Clinical Research Network (RDCRN)

About the RDCRN

Learn more about the RDCRN program and its network of study sites.

RDCRN Funding Information

Find out about funding opportunities, how to apply and how to collaborate.

Magnetic resonance imaging (MRI) of brain structure from a patient with Hunter syndrome.
Current RDCRN Consortia

Discover the 20 consortia and their central data management and coordinating center.

Photo of a infant touching the ear canal light held by a physian while an adult woman watches.
Rare Diseases Health Information

Access information about rare diseases for patients and researchers.

Photo of a infant touching the ear canal light held by a physian while an adult woman watches.

About the RDCRN

Learn more about the RDCRN program and its network of study sites.

Magnetic resonance imaging (MRI) of brain structure from a patient with Hunter syndrome.

RDCRN Funding Information

Find out about funding opportunities, how to apply and how to collaborate.

Photo of a infant touching the ear canal light held by a physian while an adult woman watches.

Current RDCRN Consortia

Discover the 20 consortia and their central data management and coordinating center.

Photo of a infant touching the ear canal light held by a physian while an adult woman watches.

Rare Diseases Health Information

Access information about rare diseases for patients and researchers.

Work with Us

Tiina Urv, Ph.D.

RDCRN Facts

Download the RDCRN fact sheet (PDF - 477KB).

Learn about the RDCRN

The RDCRN program is designed to advance medical research on rare diseases by providing support for clinical studies and facilitating collaboration, study enrollment and data sharing. Through the RDCRN consortia, physician scientists and their multi-disciplinary teams work together with patient advocacy groups to study more than 200 rare diseases at sites across the nation.