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RDCRN Applicant Information

The Rare Diseases Clinical Research Network (RDCRN) program is designed to advance medical research on rare diseases by providing support for clinical studies and facilitating collaboration, study enrollment and data sharing.

Applicant Information

Contact

RDCRN Program staff
Tiina Urv, Ph.D. 
Joanne Lumsden, Ph.D. 

The Rare Diseases Clinical Research Network (RDCRN) was established by The Rare Diseases Act of 2002 (Public Law 107-280), which directed the National Institutes of Health (NIH) to support "Rare Disease Regional Centers of Excellence" for clinical research, career enhancement, and demonstration of diagnostic, prevention, control and treatment methods for rare diseases. The RDCRN has been continually funded through competitive grant cycles every five years since 2003.

Open Funding Opportunity

No open funding opportunities at this time.

Prior Rare Disease Clinical Research Center Notice of Funding Opportunity

Prior Data and Management Coordinating Center for RDCRN Notice of Funding Opportunity

Last updated on November 26, 2025