Have a rare disease?
The Genetic and Rare Diseases Information Center (GARD) offers credible, up-to-date health information for many rare diseases.
Interested in therapy development?
Access tools that can help patient groups advance medical research and patient-focused therapy development via the NCATS Toolkit for Patient-Focused Therapy Development.
Principles of Community Engagement
This comprehensive guide, available in English and Spanish (PDF - 3.29MB), outlines core principles for engaging diverse communities in clinical research activities.
Therapy Development Resources
The NCATS Toolkit for Patient-Focused Therapy Development (Toolkit) was created to provide a collection of online resources that can help patient groups advance through the process of therapy development and provide them with the tools they need to advance medical research. Download the Toolkit fact sheet (PDF - 645KB).