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A participant shares her group’s top two ideas from the brainstorming breakout session at NCATS Day: Partnering with Patients for Smarter Science on June 30, 2017.

First NCATS Day Demonstrates Commitment to Patients

NCATS hosted an inaugural event to identify patients’ needs and brainstorm ways to foster engagement at every step of the translational science spectrum.

Have a rare disease?

The Genetic and Rare Diseases Information Center (GARD) offers credible, up-to-date health information for many rare diseases.

Patient/Community Engagement & Health Information

To ensure patient involvement and community engagement throughout the research process, institutions must collaborate with community organizations and patient groups to identify and understand public health needs.

Find NCATS Programs & InitiativesAccess NCATS Expertise & Resources

Genetic & Rare Diseases

The Genetic and Rare Diseases Information Center provides up-to-date health information about numerous rare and genetic diseases.

    Undiagnosed Diseases

    The goals of the Undiagnosed Diseases Program, led by the NIH Common Fund, are to provide answers and advance medical knowledge about rare and common diseases.

    Clinical Trials at NIH

    Patient involvement in clinical research helps investigators uncover better ways to treat, prevent, diagnose and understand human diseases.

      MedlinePlus Health Information

      MedlinePlus, produced by the National Library of Medicine, offers easy-to-understand, reliable information about diseases and wellness issues.

        Principles of Community Engagement

        This comprehensive guide, available in English and Spanish, outlines core principles for engaging diverse communities in clinical research activities.